GT On the Move!

It has been a while since I posted since bringing Quinn home. So many things have happened since the last date. I have learned alot about QT and educated my son as well. I am not placing IV's in his arm and infusing Novo Seven (Factor 7) as needed and packing his nose. Finding new ways each time to try and eliminate as much of the bleed as possible. Over the past 6-9 months it seems that Quinn is becoming worse and more severe and bleeding more often. At this time, he seems to be building a resistance to the Platelets as well as developing reactions to the Platelets and Blood Products. At this time, our best option for life is to seek out a Bone Marrow Transplant. It is a rough and hairy process!!!! However, would potentially cure the GT and give him a chance at a normal life. Hopefully, the end result would be a good one for us. It does not always turn out that way. The end result is that sometimes it can be fatal with the extreme dosages of Radiation and Chemotherapy that come with it! I have started the research again on it and am waiting on an appointment. Our team of docs flew to Chicago on Thursday to get some information. I will be anxious to hear from them.

Quinn has been selected as a "Make A Wish" candidate. Of course his most wanted wish in the world was to go back to China. At this time I dont feel like this is the best health decision for him with the types of treatments that they provide. In addition, if I remember correctly I would not be able to take his meds across the international lines because of the blood products. So, his wish has been changed to meet Selena Gomez or have a new home or build on to what we have so that the family can enjoy a fun game room. I sure hope that he is able to carry out one of these ventures. If he does have the Bone Marrow Transplant this would be awesome for him as he would be confined to me and the home for a long while. He will probably get sick of me! :) LOL

I will try to coninue to update this BLOG in hopes for prayers and a bone marrow donor to come forward to save his life!