Day +5

Quinn has had another great day. He has been out of the room most of the day except for this nmorning. He has been in the playroom watching several movies including Harry Potter. Today I was able to go check out some movies for him. I hope he likes my choices. They have 2 areas to our floor. One for the cancer patients and one for the Bone Marrow Transplant patients. So, he isnt able to leave the floor due to bacteria that may be laying somewhere. Our room keeper is Maria and she does such a good job!

This morning we received news that his white count showed up a bit and is at 0.11. Not much of a count bus it is something. The doctor told me not to get too excited because the counts dont usually show up until days 7-9 on cord blood donors. So, if it isnt there tomorrow then I wont be disappointed ... will just be something that is to come!! But, would love to see something.

Today he received a unit of blood. No platelets as his counts were good.

Have a great weekend everyone --- Auntie Lorrie Happy 50th!!!! We will be thinking of you please.

Day +4

Today Quinn has a great day...he was up and out of the bed many times, played in the playroom and sat in the big chair. Keeping those big muscles of his in good shape.

He doesnt feel like eating alot at this point but has food suppliment connected to his Hickman line.

Today I shaved the remaining pieces of his hair. He gave me the word that he was ready. He looks so adorable!!!!

Things seem to be going along well and I will leave it at that so nothing comes up to bight us in the beind. The docs are pleased with his progress as well.

Day +3 Nightmare on Elm Street

We have had a rough day. Quinn is doing ok. He is resting alot so that the transplant can be successful. Last night he had a horrible nose bleed - actually 2 of them. Luckily I had my nosebleed bag and was able to help him out. He received a unit of platelets and also a unit of blood. He is taking quite a few medications for the moment, which is not uncommon at all after a transplant. Most recently, they discovered that he had an infection in his blood stream. Which they are successfully treating. So we will remainon the antiobiotics for a total of 10 days just to make sure. Good News is that he hasnt ran a fever since they started the meds. So,it must be the correct meds.

Unfortunately, the doctors that we work with are specialists in the Bone Marrow Transplant area and not so much in the Glanzmanns Thrombasthenia area. Last night we had a "Fellow" on call while Quinn had his nosebleed. That caused alot of turmoil and she had no idea what to do and then tried to think of ways to take care of him. None were successful. And she refused to listen to me. I am not a doctor by any stretch of the means but do know alot about Glanzmann's Thrombasthenia and what works and doesnt work for my son! I felt like I was living on Elm Street or something. I am trying to be patient and wait until the main doctor comes in so that I can speak to him. There will have to be a few ground rules set. I love my son dearly and refuse for him to receive care that isnt acceptable.

It will be another 1 week or so before we will start seeing the new cells creap into his counts. Since they were cells from an umbilical cord, they have to stay inside the bone marrow to grow. This is called "Engraphing". I am anxious for that day to arrive.

Quinn received a new haircut today. After all of the Chemo that he had, he lost the majority of his hair. I had brought my clippers with me just in case. He wanted to keep his longer hair but unfortunately, that didnt work out so well. BTW, he looks adorable and his beautiful almond eyes just stand out!! The ladies will be going crazy over him!

Hoping tomorrow goes much smoother than today! Everyone say prayers and cross your fingers.

Day +1

Today was a resting period for Quinn. He slept most of the day and evening. We Watched his blood presssure, fever, headache and heart rate closely throughout the night. He seems to be much better today. He got alot more sleep than his mother.

Quinns sisters are anxious to see him but we felt that it was better for him to rest. A few things concerning came back on his labs. But all is ok.

Renner Roadrunners we thank you greatly for all of the words of inspiration and caring that you have shown Quinn! He needs support at this time.

Transplant Day #0

Today was the big day for Quinn - a day he has been waiting for a long time. The big event happened around 12:45 or so. Such a small bag of cells with alot of power in it. I have great pictures of the event. I haveto admit it was both scary and exciting at the same time.

He did not have a reaction to the cells except for a horrible headache. The headache became so much he vomited and couldnt stand. Then the blood pressure shot way up as well as the heart rate. I thougt I felt a fever coming on but went away. About an hour it came on at 102% something. He was given meds to assist with the blood pressure, headache and fever. Quinn has slept since afternoon and still continues to sleep.

I am glad that the day is almost over but will be glad to see tomorrow come!

Day #10

Today was a free day. Quinn's sisters came up along with Cousin Kel, Auntie Aron and his Papa and Dad. The kids played in the game room several times shooting hoops and playing game. Too much fun. Quinn was especially excited to show Papa how he could shoot hoops.

Quinn ate well and is excited for tomorrow to arrive.

Day #9

It seems like the time is passing quickly so Quinn says. He finished his chemo this morning at 2am. So,we have had a relatively free day. Alexandra and Alice Jane came up this morning to see him and stayed until later afternoon. The kids got to watch a movie and play in the playroom. It was nice to see them all together. Quinn was certainly excited. Tomorrow is another free day of rest. I believe his sisters will be able to come back tomorrow.

Quinn has developed those nasty sores in his mouth from the chemo. So far, he is tolerating them very well. He is a trooper and not complaining much at all.

Monday is the Bone Marrow Transplant. Actually, it wont be like a surgery at all. They will hang the donors cellls and put them into his body via a central line. The baby cells they tell me are pretty "Stupid" and dont know what to do so they hang out in the marrow until they mature a bit. Then they start c0ming out and his counts will start going up. Hopefully, this will take care of his rare bleeding disorder. So far, he has had a bloody nose and lost a tooth. Nothing major at all. I was so excited that I jumped up and down!

Quinn's Papa and Aunt are coming tomorrowto see him. He has talked about that alot!

Thank you to all that have made comments, Quinn loves them and is so excited toreceive them!

Day #8

We are almost through all of the Chemo!!! Yeah! Quinn has handled it beautifully. I am so proud of him. Not sure I could be as tough as he has been. Very brave little man!

Today he has slept about 90% of his day. He met with the teacher and did a little homework, took a bath and ate 2 meals and of course was woke up many times by the nurse. But managed to go back to sleep.

I have caught up a few things that I needed to do and went for a few walks inside the hospital. Was nice to see a different part of the hospital for a change.

Monday we are all set for the Bone Marrow Transplant! He is ready to move on and so am I. There is alot to learn yet. I learned glanzmanns and am sure that I can learn this too. Just need some time and info.

Days 6&7

Chemo time seems to be flying fast and Quinn is doing so well on it. He has lost some hair but not enough to notice a difference. He has only been sick 2 days in all. Which is outstanding in my book. Today they doctors feel that he is at the end of of Glanzmans and will be ready for the transplant on Monday. The old Platelets were so weak and work out that it didnt take much for them to go. He has new donor platelets on board. At this time, they have decided not to give him any more platelets unless needed. The good news is that since he has a new system the Antiobodies to the platets is gone!!!! Yes, Gone!!!!! That is great news. Our last chemo day is Saturday. The chemo that he is taking now is specific for Bone Marrow Patients to prepare the body for the transplant. Next week he will have a complete turn from what he has now. He will probably be in alot of pain and on pain pills most of the time. My poor baby!!!! I sure wish i could do this for him. Once he has completed the transplant we will continue to see the doctors for 1 year. At that time the new system should be in tact and all ready to go!!! I can hardly wait! Hopefully, this will be a memory of the past very soon. It is so hard to see your child suffer or go through any of this.

Aunt Tammy came up for a few hours today. I stayed close to the hospital just in case there was a nose bleeding episode. Not quite trusting yet. It will take a while.

Thanks 5th grade class for allowing "The Monkey In My Seat" to join your classroom! You will have so much fun with it. Quinn is sleeping with his everynight and thinking of you all! :)

Day #5

What a cruddy day lot of snow. Quinn opened the day with a massive bloody nose. He is now sleeping finally and the bleeding is slowing up. I have been caring for his bleeds succussfully for several. And these docs are treating it like a minor bleed and wont listen to me. When he bleeds he needs to be medicated and packed immediately. After filling up 2 large bowls they had to check to out to see if I could really do it. Immeciately, I got permission to use my own packing and to pack it right away. My voice was heard this morning. Will see. A bit ticked that the hematologist is now involved again. She has ordered Factor VII for Quinn along with the platelets. That is totally not necessary. The platelets should be all that is needed along with the packing. The hospital charges $60k for a unit of Factor. She is on her last leg with me. Well thismorning I was quite miffed with her. I tried to fire her several months ago and shepromised all this and that .... shemay get fired yet. I guess I am just a xxxxxxx. Don't care!!!!!

The girls and Owen camefor a minutes tonight. As always nice to see them but hate hate hate to see them go!!!! School was out today due to a snow day so they stayed with cousin Kelly and had a ball!

Tomorrow we start a new chemo - Busulfin. Seems like the ATG Rabbit has been very hard on his sleeping pattern. He is sucha trooper and told me tonight "Momma I am sure glad we had this one Marrow Transplant" So he super great attitude which I am forever thankful for.

Day #4

Well,we have made it to day #4 so far. Quinn is such a champ and handling the fever, multiple chemos and sleeplessness along with nausea and vomiting. He just takes it in stride and goes with whatever comes along. Very proud of him! One more day on this hard chemo and we move forward to another. The next chemois known to cause seizures. Not looking forward to that at all.

The girls are having a hard time as well as I. However they are happy to see each other. The girls were up both Friday and Saturday night,

Well, they are calling us for bath to get the bacteria off of him. Fun Fun!

After getting out of the bath, he got sick to his stomach and developed a bloody nose. Luckily, it wasnt too bad. Unfortunately, they will not let me pack his nose or anything. Platelets were ordered stat. So, in the meantime I have an angry boy becuase I cant pack his nose! He told the nurse that this was a really crappy policy to just let him bleed !!!! I couldnt agree more. The chemo will have to be stopped while the platelets are going in. So, it will be a late night finishing up chemo tonight.

Day

Day #2

Today a second chemo was added for Quinn. He developed a high fever and developed nause and some vomiting.

Later in the evening, his sisters came to visit him. They miss us terribly. Poor little Alex is having a hard time without her brother. For some little girl who wasnt so sure about having a brother in the beginning ...... Heck, they are like mut and Jeff tied to the hip. I felt so sorry for her,s he stood at the door telling him goodbye and I love you! Tears were about to roller down her sweet little face. Quinn looked at her and said "I Love You Too Alex". Those words for Quinn are hard to come by .... So, it was a true blessing to hear him tell her! He even admitted that he missed her and Janie!

Janie has been busy taking pictures of my kitty cats with her IPOD. I must say, she is quite the photographer. The pictures of a few of them are picture perfect!

Today is the Day!!!!

We made it early this morning to Hem/Onc and were held up due to the Hives from the platelets. So with that, we were late getting to Same Day Surgery to get his Hickman put in. It was 3:15 before we got out of there and then had to get to the room. I had 2 wagon loads of stuff to bring up to the 4th floor. I didnt think I was every gonna get done with that. Quinn mentioned he was hungry. He had 8 orders of tater tots!!!!! and a sprite. Wow!!!!

All went pretty well for the most part. He did have some bleeding after the line was put in but nothing unexpected. His platelet count dropped to 6.1. We are waiting for them to come to the floor to be administered.

My Janie is tore apart and can hardly understand her when she calls because she is crying so hard. Poor Baby! Alex is upset but is able to contain herself. Now, they have me looking like Rudolph the Red Nosed Reindeer.

Tomorrow bright and early at 8am the Chemo begins. It will run in 4 hour incrimentsover 16 hours a day .... everyday until transplant! Poor Baby!

Almost There!!

Sorry it has been so long since I last posted. It has been busy and we have had alot of bleeding since my last post; along with a couple of visits to the hospital for platelets. He seems to be so much worse over the past few months and the blood runs like water out of his little nose. With that comes a quick drop of the Hemaglobin. Very scary stuff when that happens.

We made it through of our Pre Examinations for the Transplant. He was not happy with the 24 hour Urine Collection test that had to be done since we had to do it twice. Looks like everything is ready to go along with the approval from the Insurance Company. Everything except me that is. I have so many things to get ready before I go.

Both girls are having a very hard time with me leaving them. They have been fighting alot this week. Finally, when I talked to Alex about it she just broke down and then came Janie right behind. They are both a mess about the separation. We had a talk about family and what it means and how this will be so awesome once Quinn is home and feeling better. They were pleased at the thought of a girls day without their brother and how he could go fishing with his Papa and Daddy without Mom being right behind them. Quinn is so excited at the idea of going to Papas farm and then go fishing or whatever it is that Dads, Grandfathers and boys do fun together! Very cute. He also figured out that Papa was off work the day of his transplant and asked him to come up to be with him that day. So, I am hoping that the majority of the bugs are worked out with the girls. Just trying to line up some projects for them and get the electronics lined out where they can actually see us. It will be hard but am hoping that they make it ok. As long as we can talk through this as it comes I think it will be fine.

So, next Thursday is out Admit date. He will get a port and a feeding tube at that time. I am very nervous about the bleeding he may encounter. We will go several hours before the surgery to get Platelets and Factor. Hopefully, this will be enough! Chemotherapy will follow everyday until the transplant on the 20th. From there I hope that it is uphill and the Transplant does not have to be re-done. If his numbers arent coming up enough then they will pull the 2nd Umbilical Cord and Transplant that as well. I am very greatful to the families that donated the cords so that my baby can be given life!

I look forward to calls, texts and email from friends and family. Unfortunately, we ask that there be no visitors other than our household. The flu is so horrible right now I dont want to take a chance at all. He can not have anything brought in from the outside either. So, no flowers and balloons or yummy foods. I know, those things really cheer you up. However, you can email me for Quinn and I will make sure he gets it. I will have my smartphone and computer equipment there with me and will check it frequently. if you dont have my phone# and email address send me a PM and I will send it back across. I know the "September Leaves" will be watching closely but to let you know the email address differs from what you have on the site.

I fell a week and a half ago on my left knee and went for an MRI last night. The swelling is horrible and can barely get a sandle on my foot. Range of Motion stinks and can hardly go up the stairs at all. Waiting to hear from the Doc this afternoon what the outcome is going to be. I sure hope that it is better by the time that we go. There will be so much to bring in by myself and lots of steps to take at the hospital. Childrens Mercy is pretty big.

Fingers Crossed!

Waiting!!!

I am not a patient person and really dislike waiting!! I am ready to get this show on the road and moving.

Tuesday I met with the school to come up with a game plan to get Quinn through the 5th grade. As it turns out the hospital offers tutoring services and will work with his school! Awesome News ~

With all of the cold we are trying to stay inside away the weather and sick people. Certainly dont want to hold anything up that is for sure! Plus this old body hates the cold!!! Each year it gets harder on me, especially with RA.

Trying to concentrate on the girls and preparing them for what is to come. It could be days once we get there before I am able to see them! We have never been separated since we went to China for our children and they were babies at that time. Wow! I remember how hard that was all those years ago. My heart break thinking about it. But have to concentrate on Quinn. I worry about Alex. She and Quinn are awfully tight. We call them "the twins" alot. And Janie is so soft hearted and will probably cry every day. However if she can talk her dad into taking her shopping everday and spend money on her she will be happy until the next day! She is my shopping girl and daddy will feel sorry for her and take her!

I am trying to get all of our technology up and in the right direction so that the kids can communicate with each other. It is hard since I am technically challenged. Things change so fast about the time that I think I have one down then a new one comes along. It will be easy for anyone wanting to say "hello" to Quinn or I to comment on the BLOG page, text or email me. If you are in need of those addresses, please let me know. I also bought him an IPOD Touch and believe that he can have Face Time on that as well and can receive emails through there also. It is hard to say if he will feel up to checking them or not. But I can certainly pass along messages to him.

Quinn talks about once we are home and he is feeling good that he would like to have his "China Sisters" (from Calif and TX) come and visit him and how they can all be together again!

Monday we go to the Transplant Clinic to sign paperwork to request the Umbilical Cords officially and sign off on them to get them here. They are being held for us momentarily. The following will be a bust and be super busy with quite a few clinic appointments and physical examinations and our last appointment with the Transplant Docs before the Transplant and Admission date on 2/9.

Quinn will be 11 on 2/6 ~ What a wonderful birthday present! More than I could ever give to him.

Fabuloso News Today!!!!!!!!!!

Early this morning I received a call from the BMT Center regarding Quinns transplant. He will be admitted on the 9th of February and Transplant on February 20th!!!!!! Yeah!! Unfortunately, it was unable to be set up any earlier due to our doc being out of town. But we are a go and packed with several appointments before that time. He has a series of tests to go thru, special consents to be signed since it will be an umbilical donor. Thank You Mr. Government! And our last appointment is 2/26 with the Physician to go over all test results etc. And then we wait, again!

The live donor did come forward but turned out to not be a match. Thank you for trying "unknown person"! So, we have 2 umbilical cord donors. One will be a backup just in case we have a problem with engraphing or need the cord for other reasons.

Quinn will celebrate his 11th birthday on February 6th! What a birthday present he will receive. Better than anything that I could ever give him.

What a Rotten Week !!!

On Monday Quinn had a significant bleed and again on Thursday. Finally quit bleeding in the night on Thursday. I knew when he woke that he needed blood so I made the call to get labs done. Unfortunately, it was later in the day when they called me back and advised us to go to the ER to get packed RBC - probably 2 units. His heart rate was 165 from being so low on blood. And the docs and nurses were horrible about dragging their heels. One doc had the nerve to tell me that I didnt know what I was talking about and that I was just there to cause trouble for him!!!!! How dare he! That man wanted to give Quinn Platelets and he wasnt even bleeding! So, the Beulah Bell (my wonderful grandmother who has passed) came out in me!!!!! He called me sour names and all kinds of stuff. Last words for him was he was not allowed in my sons room again and to get our Hematologist on the phone for me now!!! Giving platelets to him when he is not bleeding is totally not necessary and should be reserved for him since he is on the cuff of building antiobodies to the platelets anyway! He even managed to tell me that I had no idea what I was talking about and knew nothing of my sons disease!!!!!! OHHHHHHHH! Every one that I touched base with gave me some sort of business and made me cry even harder! Horrible, because I am not a cryer at all! I felt so rotten that I called my cousin to come and sit with me!

Finally, we were admitted to the floor and given RBC about 6 hours later. It was totally unacceptable for me to see him with a high heart rate and no RBC's being administered. Not good quality of care at all! This will be passed along!

Some News Today and Some Not So Good

Today the nurse from the Bone Marrow Center called me back. She is so nice and takes time to answer your questions. Yet, she is a busy woman. At this point, this is the news that I know and hope to hear the full scoop on Tuesday morning. Quinn's file is "Actively being worked on".... Hold Please!!!

OM Goodness, Alex just came blasting in the house that Quinn was bleeding from the walk down the street from the bus stop. I honestly, didnt know that I could run that fast. I yelled for her to grab toilet paper since it was the closest and swooped him up quickly. Just finished with another IV and Factor Infusion. Wow, this one is bad also!! Oh Lord, please be with us and allow us to stay at home and not visit Childrens! I have asked so many times of you and have been given the experience as you see fit. At this time, Lord, please do not allow any more platelets for my son until this process is in place. His life is hanging in the bows. Please grant me the strength to protect him and be a good caregiver to him at this time. Thank You!

Ok, so back to the story .... It sounds like the "Live Donor" may have come forward but can not be for sure as their privacy is protected. But was told that all information on the 3 were due back today and Dr. Meyer and her would sit down and review the information. At that time they would choose the best candidate for him. Tuesday morning I am to get a phone call back from her with information and an examination date for Quinn. It sounds like we may be able to set a date for this process to begin. Will cross all fingers and toes that this is what happens. It will take about 4-7 days for an umbilical donation to arrive from the Marrow Center. If we get a "Live Donor" then the marrow will be sent on a commercial airline by courier to guard it and could arrive quicker. Depends on where the contents are coming from world wide.

New Years Eve

We were very excited that Ming and Sue landed in Kansas City Thursday evening to visit. That was all that Quinn asked for before his transplant was to see Ming! They had a wonderful visit with each other and left Sunday afternoon. Ming and Quinn were in the orphanage together for many years. Ming is 15 and Quinn will be 11 in a couple of months. They are so cute together and he listens to her better than he does me! They have quite a special bond with each other. He asked if Ming could come back after his transplant. Of course, I know it will make him feel better to see her!

We Survived the Holidays!

We survived the holidays quietly and the kids had a ball. I fixed a Christmas dinner in the afternoon just for us. The kids played and the house was a wreck!!! All was well


Prior to Christmas we went to my sisters. Mom and Dad was not going to make it. But surprisingly did and Dad met me on the steps! That was the best present I had received! Everyone was suprised to see Quinn also!


The day after Xmas we went to my sister in laws. What a full household that was with lots of kiddos. Especially, it was wonderful to see my Brother In Law in the kitchen cooking his favorite stuff. He himself has had 2 liver transplants. The latest was April 20th of 2011. Amazing how wonderful he looks. Another wonderful Xmas gift to see.

Today Quinn started bleeding a bit before noon. It started off slow and turn into a Tsunami very quickly. We both looked like we had been in the battlefield with bows and arrows. What a mess. I had to start an IVon him quickly. He has slowed a little. However, I am very concerned about him having to have platelets. We are done most likely if that happens. I am just hoping that I can get this stopped at home and not make a trip to Childrens Mercy.

I made a call to the Transplant Unit today to talk to the nurse. Unfortunately she had left for the day. I am seriously hoping for a call tomorrow and an appointment to be set up! Cross your fingers and toes!

What a Wonderful Day This Has Been!!!

Today was the day! I have been so anxious and nervous about this appointment today and have to admit that I felt that there would not be a donor for my Quinn. Alexandra wanted to join us also which was great! Auntie Lorrie went to understand the specifics of the chemical make up of the body and I was the person who understands Glanzmann's like the back of my hand. So, together we made a great team. Alex took notes on the Tablet and played her DS. Quinn was leaving it up to me and played his DS the whole time. It was a long appointment - 3 hours.

First we briefly met with the Hematologist and her Andrew follwed by the BMT team. What a nice group of people they were and very down to my non medical level. We went through the specifics and I asked several times about a donor. Lorrie said I was about to turn purple with nerves! But I survived :) Finally, they told us that there was a "Live Donor Match" for him that they had been trying to contact for a physical and blood draw. But no luck. Next, we have an Umbilical Donor who matches 5 out of 6 items and a third Umbilical Donor that is currently being tested. The results from #3 wont be in for about another week or so. They were going to try to continue to contact the "Live Donor" for a few more weeks. So, I can expect that we will hear soon. My gut says that we will receive and Umbilical Donor. Which is perfectly fine with me. From what I understand there is more manipulations that can be done than with a live donor. As they say it is all a balancing act and things will go wrong but most of the time can be corrected. And of course there is a chance of the worst case scenario. At this point, I believe we have made the right decision and am hopeful that we can get this going soon before he needs more platelets, as he will need some during the process of the transplant. It is unclear how much the platelets will be of benefit to him. Without them we are out of luck literally!

Thank You so much for all of the prayers everyone! I understand that this has to be in God's timing but I would very much like to see the timing be in our favor! Please continue to pray for him and see him through this process. The thought of seeing my son play football, basketball, baseball, jump like a monkey, be a doctor are all things on my mind that I would love to see him involved in. His Daddy and Papa would be so excited to see the sports come out in him. He is such a competitive fellow!!!! Wow, we may see a side to him that we have never saw before ... Go Quinn!!!!

AHHH ... A Semi Quiet Day!

Today was somewhat quiet. At least no major bleeding which is fantastic! Quinn has lost 8 teeth in the past month and has been a challenge. Two days ago he lost a molar and is bleeding slowly off and on. Ice Cream with a soft cone has became a danger to the poor guy. He came to me tonight with both sides of his mouth bleeding and packed. Luckily, his oral meds helped and all is well at the moment.

Janie was home sick today with a tummy ache! Poor little Tiger. The tummy stuff has been horrible this year. And unfortunately, mine didnt feel so well either. The meds (oral chemo) that I am on for RA brings my immune system down a touch and tend to catch things a bit easier. But, am back on the move again! Now to get Janie up and going will be nice.

Yesterday morning quite early the kiddos and I bundled my little Mia up to take her to the vet for a laser declaw and shots. Picked her up this morning and was so glad to see her. She was terrified at the vets office and really gave them a run for their money. Honestly, I think they were glad for her to go and she was glad to see me. They restled her so much I think her little 8 lb. body is wore out and she has slept most of the day or has wanted me to hold her. Poor baby wouldnt eat so what do I do .... fix her an over easy egg and dipped my finger in to feed her ..... I got laughed at but did get her to eat some! I love my kitty cats! They never talk back :)

Yesterday I spoke to Love Without Boundaries, which is how I found my Quinn. They are a non-profit organization that assists children in China with many types of needs as well as Foster Care, Cleft Lip Homes, Therapy, etc. They are wonderful and I truly mean it. The people working there are volunteers and work so hard for these children. Quinn was lucky enough to meet some of these wonderful people after he came home from China. And of course they remember his sweet little face! LWB was kind enough to post on their Facebook site about Quinn and try to build awareness regarding Bone Marrow Transplants. Thank You from the bottom of my heart for everything you have done for my son!!!!

I am anxiously awaiting our appointment on the 21st. Glad to check another day off of the calendar everyday!!!! Praying for a Seasonal Miracle. While most people are counting the days down for Christmas, I am counting the days down for our doctors appointment. It is depressing somedays and my mind wanders about what irrational/rational move I will make if there isnt a donor available. I think I have a few good ideas up my sleeve and hope that I dont have to go there. Honestly, I dont want to think the worst but it is so hard to keep positive at times.

Remember to register to be a Bone Marrow Donor at "Bethematch.org" It is very simple and only takes a few minutes. Asians are the best match for him typically, but that does not rule out anyone from possibly matching him.