Day +16

First off a Happy Birthday to my Triplet Nieces - Ava, Sophia and Bella who are 9 today and I love you very much!! They all want to work in the Veterinary business one day so I hope that they received alot of doe rae me today! And also to my sweet Jessie Ray who is 22 today. Shoot, I remember very well the day these babies were born and now look at them. Almost half grown and grown!!!! Man, I am old!

This morning started like all other mornings except I woke with major hot flashes and couldnt seem to get cooled down at all! The young sweet nurse was laughing at me! Just wait sweetie ... you will find out one dayand you wont be laughing! :)

After our morning routine and everyone and his brother coming in to see us ... the doctors, the nurses, the house keeper, the morning shower and other requirements ... finally it was noontime and I felt whipped already. It wasnt until then that I was actually able to get in the shower. However, I did have a cup of coffee or two which was helpful. The mornings are crazy around here sometimes and can feel a little frustrated at times. The nurses come on staff at 7 and do a 12 hour shift. It takes alot of planning on their parts for the day to keep the medicines scheduled timely and running around the clock on Quinn. Right now there are alot. However, we were able to get rid of an antiobotic and give him oral meds in its place on another med soon ... a good thing! Right now, there are lines upon lines upon lines running off of his Hickman! It takes a velcro wrap to keep them all together. Then when someone comes in to add something else it takes more managing to put it all back orderly. That is my frustration to work with!

Quinn had a good morning and was very social again. He crashed around noon and slept until 2:30 or so today. Good that his body is actually resting. There was no fever today at all until 8:30 pm which was very short lived. I am happy to see that change. He enjoyed being lazy in bed the rest of the day. And I am not joking about the lazy part. We have been talking about him trying to keep his strength up and do things for himself without assistance unless he actually needs me to help. So, he learned a few short cuts ...... and I will leave it at that!! Not a happy Momma! The TV and DS are actually a good entertainment piece at times for him but other times they are a negative. Today I suspensed the DS for a while to let him know that it is serious business to be able to take care of his personal needs. Maybe this sounds harsh to some ..... but believe me he seems to look like a picture of health except for the shiny head. He needs to be able to maintain himself and keep strength up to get the heck out of this hospital. The hands and fingers from the DS will be fine!

So, while Quinn was sleeping today the doctor came in to see me this afternoon. Ok, so something is going on I am sure. Since the transplant they dont stop as much in the afternooon. Well, they found another virus that was trying to reactivate itself from a child. The HHV6 which is the Rosiolla virus. This hits most kiddos between 6*18 months. And am certain that it wasnt treated since he was in China at the time. They found 12,500 copies in his body. A little higher number than I would have liked to have heard. This virus would have been a threat to the engraphment process and have caused it to fail if they had not of caught it in time. So, he had another medication added back again for this. Actually, the one that they just took him off of several days ago. He had a 5 day course with it for the CMV Virus. From what I understand the dosage wasnt high enough to kill the HHV6 and that is why it showed up again. This time he will be on it for at least a month depending on how his counts look. He will be sent home on this and I will be administering this along with several other meds and the Hickmans. So, my "Quinn Home Health" job just got me hired again! Unfortunately, we will be here for about 2 more weeks.

Early this morning he received Platelets and tonight a unit of blood. There must be more repairs in the intestinal tract that have yet to heal. Hopefully, this will happen soon. He actually did well to not need a new unit of blood for a week.

I am hoping for a good nights sleep and higher ANC counts in the morning and a less sassy child tomorrow!

Please continue to pray that the virus' have all been found and that this ANC counts will continue to climb up.