Today Owen came up early to let me go home for the night. First time I have left the hospital! I picked up the girls from school to hear lots of hooting and hollering. We had an early dinner at Applebees with 2 of my friends and then off to shop. Too much TV watching had Quinn finding a few things he wanted. Well, he got his wish list!
Next day I had errands to run and kept the girls out of school because they begged and pleaded with me.
When I got here I noticed that Quinn was breaking out in a rash. Which is one the signs of engraphment. Unfortunately, it hasnt happened yet. The doctor said that he would give him 30+ days before he did a Bone Aspiration and consider another Transplant. We have 2 Umbilical cords. Our first choice was a 5/6 match and the second is a 4/6. The research that I found on the internet from the 1960's of the 3 cases of BMT were sibling donors. The engraphment times were 13 * 14 days on one and 19*20 on the other. So, I sure do hope that this happens soon. I would hate to see my boy go thru all of this again! He has been such a trooper and SO SO strong. Much better than I would have ever done. He is ready to get out of his room. Unfortunately, he cant do that either due to the fever he has. No reasons that they can find. So is assumed that it is part of the engraphment phase. God be with us us here!!! Momma is weak and losing her patience. I am sure you are trying to teach me a valuable lesson. Just waiting to see what it is.
Wednesday, February 29, 2012
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