Day +86

So far so good!  Quinn is still sleeping.  Normally, he can sleep about 12 hours a day.  Which at this point and time is really good for his body.  Hopefully, it is hard at work on breaking those copies down.

Tomorrow morning we head out to the doctor for more labs.  The thought of getting the Hickman out is probably not going to happen for a while unless they decide to go ahead and remove it due to the length of time it has been in.  I may need to start an IV several a week for medications that arent oral if they make the decision to go there.  Which I can do easily, and Quinn trusts me.  Preferably, I would love to see the Hickman go due to the heat of summer and risk of infections.  I am very nervous about having him out for a very long period of time due to the heat and humidity.   However, if they switch him over to IV meds it may be a challenge getting them as they are new and come from out of the country and made specifically for the HHV6 virus.  Will do whatever it takes to make sure he gets what he needs.  Fortunately, for him he has a mother with a strong spirit we'll say for the sake of argument!  Not sure if that is good or bad.  When I get keyed up about something his eyes become huge and he sits saying nothing!  Which for him is very unusual.

I still have not come to grips with the information that I received yesterday.  Very hard to understand why this is not leaving his body.  His counts are up and I was under the impression that once that happened his body would fight the copies.   However, if his counts did drop, it will be harder for his body to fight the copies.  The medicine alone will drop his counts as well. The doctor and I will have a private session tomorrow and will get more answers.  He is such a caring and good doc that I have to put my faith in him.