Almost There!!

Sorry it has been so long since I last posted. It has been busy and we have had alot of bleeding since my last post; along with a couple of visits to the hospital for platelets. He seems to be so much worse over the past few months and the blood runs like water out of his little nose. With that comes a quick drop of the Hemaglobin. Very scary stuff when that happens.

We made it through of our Pre Examinations for the Transplant. He was not happy with the 24 hour Urine Collection test that had to be done since we had to do it twice. Looks like everything is ready to go along with the approval from the Insurance Company. Everything except me that is. I have so many things to get ready before I go.

Both girls are having a very hard time with me leaving them. They have been fighting alot this week. Finally, when I talked to Alex about it she just broke down and then came Janie right behind. They are both a mess about the separation. We had a talk about family and what it means and how this will be so awesome once Quinn is home and feeling better. They were pleased at the thought of a girls day without their brother and how he could go fishing with his Papa and Daddy without Mom being right behind them. Quinn is so excited at the idea of going to Papas farm and then go fishing or whatever it is that Dads, Grandfathers and boys do fun together! Very cute. He also figured out that Papa was off work the day of his transplant and asked him to come up to be with him that day. So, I am hoping that the majority of the bugs are worked out with the girls. Just trying to line up some projects for them and get the electronics lined out where they can actually see us. It will be hard but am hoping that they make it ok. As long as we can talk through this as it comes I think it will be fine.

So, next Thursday is out Admit date. He will get a port and a feeding tube at that time. I am very nervous about the bleeding he may encounter. We will go several hours before the surgery to get Platelets and Factor. Hopefully, this will be enough! Chemotherapy will follow everyday until the transplant on the 20th. From there I hope that it is uphill and the Transplant does not have to be re-done. If his numbers arent coming up enough then they will pull the 2nd Umbilical Cord and Transplant that as well. I am very greatful to the families that donated the cords so that my baby can be given life!

I look forward to calls, texts and email from friends and family. Unfortunately, we ask that there be no visitors other than our household. The flu is so horrible right now I dont want to take a chance at all. He can not have anything brought in from the outside either. So, no flowers and balloons or yummy foods. I know, those things really cheer you up. However, you can email me for Quinn and I will make sure he gets it. I will have my smartphone and computer equipment there with me and will check it frequently. if you dont have my phone# and email address send me a PM and I will send it back across. I know the "September Leaves" will be watching closely but to let you know the email address differs from what you have on the site.

I fell a week and a half ago on my left knee and went for an MRI last night. The swelling is horrible and can barely get a sandle on my foot. Range of Motion stinks and can hardly go up the stairs at all. Waiting to hear from the Doc this afternoon what the outcome is going to be. I sure hope that it is better by the time that we go. There will be so much to bring in by myself and lots of steps to take at the hospital. Childrens Mercy is pretty big.

Fingers Crossed!