Day +3 Nightmare on Elm Street

We have had a rough day. Quinn is doing ok. He is resting alot so that the transplant can be successful. Last night he had a horrible nose bleed - actually 2 of them. Luckily I had my nosebleed bag and was able to help him out. He received a unit of platelets and also a unit of blood. He is taking quite a few medications for the moment, which is not uncommon at all after a transplant. Most recently, they discovered that he had an infection in his blood stream. Which they are successfully treating. So we will remainon the antiobiotics for a total of 10 days just to make sure. Good News is that he hasnt ran a fever since they started the meds. So,it must be the correct meds.

Unfortunately, the doctors that we work with are specialists in the Bone Marrow Transplant area and not so much in the Glanzmanns Thrombasthenia area. Last night we had a "Fellow" on call while Quinn had his nosebleed. That caused alot of turmoil and she had no idea what to do and then tried to think of ways to take care of him. None were successful. And she refused to listen to me. I am not a doctor by any stretch of the means but do know alot about Glanzmann's Thrombasthenia and what works and doesnt work for my son! I felt like I was living on Elm Street or something. I am trying to be patient and wait until the main doctor comes in so that I can speak to him. There will have to be a few ground rules set. I love my son dearly and refuse for him to receive care that isnt acceptable.

It will be another 1 week or so before we will start seeing the new cells creap into his counts. Since they were cells from an umbilical cord, they have to stay inside the bone marrow to grow. This is called "Engraphing". I am anxious for that day to arrive.

Quinn received a new haircut today. After all of the Chemo that he had, he lost the majority of his hair. I had brought my clippers with me just in case. He wanted to keep his longer hair but unfortunately, that didnt work out so well. BTW, he looks adorable and his beautiful almond eyes just stand out!! The ladies will be going crazy over him!

Hoping tomorrow goes much smoother than today! Everyone say prayers and cross your fingers.