Wednesday, November 16, 2011

Happy Gotcha Day to Janie and Happy Day Bleeding Free For QUINN!!!!

YEAH!!! On both counts. Happy 8th Gotcha Day to my little Alice Jane. The day that I got her she clung to me at 10 months old with both arms wrapped around my neck, head at my ear and her feet on my shoulder looking like a Monkey!!! She was holding on for dear life and we have been stuck every since. She is attached to Momma's hip like glue and cries if I give her the look. Actually, if my children were not Asian they would all have a large piece of their Momma in them! Lets see - Stubborn-Super Temper - Sensitive - Curious - Brown Eyes and Hair - etc. I love my children greatly and feel so blessed to have them all be a part of my life!! God is Good!

Last night at bedtime Quinn developed a bleed. Once again, I immediately started and IV and issued all the necessary medicines along with packing the nose. I was fortunate enough that he stopped bleeding during the night and was able to clip the blood clot from the packing! He wanted to go to school so badly. Since he wasnt bleeding I let him. To the other children it was not noticable.

I had requested a CBC on Quinn when he bleeds so that we can follow his hemoglobin more closely to ensure that it does not fall to low. This afternoon I received a call from one of our favorite Hem/Onc Nurses Judy to tell me to be prepared because they were going to draw a few extra vials of blood to start testing it for the BMT (Bone Marrow Transplant) and to see if there is a match out there for him. If you have not signed up on the Bone Marrow Donor List.... I urge you to do so today!!!!!! They told me that it doesnt matter the make up of the person but sometimes Asians are a better match but not always! So at this point no one is knocked out. I fear for my sons life and this seems to be the best chance at keeping him alive and possibly curing the Glanzmanns Thrombasthenia!!!!! This would improve his quality of life most importantly. As the nurse put it me, it would also improve mine too...... At this point, my son is what matters. I am old (45) and my job is to take care of my family! I know fun .... He doesnt! We currently have an appointment set up for December 21 with the Hematologist and am hoping we can fit it in the same day with the Bone Marrow Transplant Department. Please pray for us and a donor to be on the list next month!!!!

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