Today was the day! I have been so anxious and nervous about this appointment today and have to admit that I felt that there would not be a donor for my Quinn. Alexandra wanted to join us also which was great! Auntie Lorrie went to understand the specifics of the chemical make up of the body and I was the person who understands Glanzmann's like the back of my hand. So, together we made a great team. Alex took notes on the Tablet and played her DS. Quinn was leaving it up to me and played his DS the whole time. It was a long appointment - 3 hours.
First we briefly met with the Hematologist and her Andrew follwed by the BMT team. What a nice group of people they were and very down to my non medical level. We went through the specifics and I asked several times about a donor. Lorrie said I was about to turn purple with nerves! But I survived :) Finally, they told us that there was a "Live Donor Match" for him that they had been trying to contact for a physical and blood draw. But no luck. Next, we have an Umbilical Donor who matches 5 out of 6 items and a third Umbilical Donor that is currently being tested. The results from #3 wont be in for about another week or so. They were going to try to continue to contact the "Live Donor" for a few more weeks. So, I can expect that we will hear soon. My gut says that we will receive and Umbilical Donor. Which is perfectly fine with me. From what I understand there is more manipulations that can be done than with a live donor. As they say it is all a balancing act and things will go wrong but most of the time can be corrected. And of course there is a chance of the worst case scenario. At this point, I believe we have made the right decision and am hopeful that we can get this going soon before he needs more platelets, as he will need some during the process of the transplant. It is unclear how much the platelets will be of benefit to him. Without them we are out of luck literally!
Thank You so much for all of the prayers everyone! I understand that this has to be in God's timing but I would very much like to see the timing be in our favor! Please continue to pray for him and see him through this process. The thought of seeing my son play football, basketball, baseball, jump like a monkey, be a doctor are all things on my mind that I would love to see him involved in. His Daddy and Papa would be so excited to see the sports come out in him. He is such a competitive fellow!!!! Wow, we may see a side to him that we have never saw before ... Go Quinn!!!!
Wednesday, December 21, 2011
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