Waiting!!!

I am not a patient person and really dislike waiting!! I am ready to get this show on the road and moving.

Tuesday I met with the school to come up with a game plan to get Quinn through the 5th grade. As it turns out the hospital offers tutoring services and will work with his school! Awesome News ~

With all of the cold we are trying to stay inside away the weather and sick people. Certainly dont want to hold anything up that is for sure! Plus this old body hates the cold!!! Each year it gets harder on me, especially with RA.

Trying to concentrate on the girls and preparing them for what is to come. It could be days once we get there before I am able to see them! We have never been separated since we went to China for our children and they were babies at that time. Wow! I remember how hard that was all those years ago. My heart break thinking about it. But have to concentrate on Quinn. I worry about Alex. She and Quinn are awfully tight. We call them "the twins" alot. And Janie is so soft hearted and will probably cry every day. However if she can talk her dad into taking her shopping everday and spend money on her she will be happy until the next day! She is my shopping girl and daddy will feel sorry for her and take her!

I am trying to get all of our technology up and in the right direction so that the kids can communicate with each other. It is hard since I am technically challenged. Things change so fast about the time that I think I have one down then a new one comes along. It will be easy for anyone wanting to say "hello" to Quinn or I to comment on the BLOG page, text or email me. If you are in need of those addresses, please let me know. I also bought him an IPOD Touch and believe that he can have Face Time on that as well and can receive emails through there also. It is hard to say if he will feel up to checking them or not. But I can certainly pass along messages to him.

Quinn talks about once we are home and he is feeling good that he would like to have his "China Sisters" (from Calif and TX) come and visit him and how they can all be together again!

Monday we go to the Transplant Clinic to sign paperwork to request the Umbilical Cords officially and sign off on them to get them here. They are being held for us momentarily. The following will be a bust and be super busy with quite a few clinic appointments and physical examinations and our last appointment with the Transplant Docs before the Transplant and Admission date on 2/9.

Quinn will be 11 on 2/6 ~ What a wonderful birthday present! More than I could ever give to him.

Fabuloso News Today!!!!!!!!!!

Early this morning I received a call from the BMT Center regarding Quinns transplant. He will be admitted on the 9th of February and Transplant on February 20th!!!!!! Yeah!! Unfortunately, it was unable to be set up any earlier due to our doc being out of town. But we are a go and packed with several appointments before that time. He has a series of tests to go thru, special consents to be signed since it will be an umbilical donor. Thank You Mr. Government! And our last appointment is 2/26 with the Physician to go over all test results etc. And then we wait, again!

The live donor did come forward but turned out to not be a match. Thank you for trying "unknown person"! So, we have 2 umbilical cord donors. One will be a backup just in case we have a problem with engraphing or need the cord for other reasons.

Quinn will celebrate his 11th birthday on February 6th! What a birthday present he will receive. Better than anything that I could ever give him.

What a Rotten Week !!!

On Monday Quinn had a significant bleed and again on Thursday. Finally quit bleeding in the night on Thursday. I knew when he woke that he needed blood so I made the call to get labs done. Unfortunately, it was later in the day when they called me back and advised us to go to the ER to get packed RBC - probably 2 units. His heart rate was 165 from being so low on blood. And the docs and nurses were horrible about dragging their heels. One doc had the nerve to tell me that I didnt know what I was talking about and that I was just there to cause trouble for him!!!!! How dare he! That man wanted to give Quinn Platelets and he wasnt even bleeding! So, the Beulah Bell (my wonderful grandmother who has passed) came out in me!!!!! He called me sour names and all kinds of stuff. Last words for him was he was not allowed in my sons room again and to get our Hematologist on the phone for me now!!! Giving platelets to him when he is not bleeding is totally not necessary and should be reserved for him since he is on the cuff of building antiobodies to the platelets anyway! He even managed to tell me that I had no idea what I was talking about and knew nothing of my sons disease!!!!!! OHHHHHHHH! Every one that I touched base with gave me some sort of business and made me cry even harder! Horrible, because I am not a cryer at all! I felt so rotten that I called my cousin to come and sit with me!

Finally, we were admitted to the floor and given RBC about 6 hours later. It was totally unacceptable for me to see him with a high heart rate and no RBC's being administered. Not good quality of care at all! This will be passed along!

Some News Today and Some Not So Good

Today the nurse from the Bone Marrow Center called me back. She is so nice and takes time to answer your questions. Yet, she is a busy woman. At this point, this is the news that I know and hope to hear the full scoop on Tuesday morning. Quinn's file is "Actively being worked on".... Hold Please!!!

OM Goodness, Alex just came blasting in the house that Quinn was bleeding from the walk down the street from the bus stop. I honestly, didnt know that I could run that fast. I yelled for her to grab toilet paper since it was the closest and swooped him up quickly. Just finished with another IV and Factor Infusion. Wow, this one is bad also!! Oh Lord, please be with us and allow us to stay at home and not visit Childrens! I have asked so many times of you and have been given the experience as you see fit. At this time, Lord, please do not allow any more platelets for my son until this process is in place. His life is hanging in the bows. Please grant me the strength to protect him and be a good caregiver to him at this time. Thank You!

Ok, so back to the story .... It sounds like the "Live Donor" may have come forward but can not be for sure as their privacy is protected. But was told that all information on the 3 were due back today and Dr. Meyer and her would sit down and review the information. At that time they would choose the best candidate for him. Tuesday morning I am to get a phone call back from her with information and an examination date for Quinn. It sounds like we may be able to set a date for this process to begin. Will cross all fingers and toes that this is what happens. It will take about 4-7 days for an umbilical donation to arrive from the Marrow Center. If we get a "Live Donor" then the marrow will be sent on a commercial airline by courier to guard it and could arrive quicker. Depends on where the contents are coming from world wide.

New Years Eve

We were very excited that Ming and Sue landed in Kansas City Thursday evening to visit. That was all that Quinn asked for before his transplant was to see Ming! They had a wonderful visit with each other and left Sunday afternoon. Ming and Quinn were in the orphanage together for many years. Ming is 15 and Quinn will be 11 in a couple of months. They are so cute together and he listens to her better than he does me! They have quite a special bond with each other. He asked if Ming could come back after his transplant. Of course, I know it will make him feel better to see her!

We Survived the Holidays!

We survived the holidays quietly and the kids had a ball. I fixed a Christmas dinner in the afternoon just for us. The kids played and the house was a wreck!!! All was well


Prior to Christmas we went to my sisters. Mom and Dad was not going to make it. But surprisingly did and Dad met me on the steps! That was the best present I had received! Everyone was suprised to see Quinn also!


The day after Xmas we went to my sister in laws. What a full household that was with lots of kiddos. Especially, it was wonderful to see my Brother In Law in the kitchen cooking his favorite stuff. He himself has had 2 liver transplants. The latest was April 20th of 2011. Amazing how wonderful he looks. Another wonderful Xmas gift to see.

Today Quinn started bleeding a bit before noon. It started off slow and turn into a Tsunami very quickly. We both looked like we had been in the battlefield with bows and arrows. What a mess. I had to start an IVon him quickly. He has slowed a little. However, I am very concerned about him having to have platelets. We are done most likely if that happens. I am just hoping that I can get this stopped at home and not make a trip to Childrens Mercy.

I made a call to the Transplant Unit today to talk to the nurse. Unfortunately she had left for the day. I am seriously hoping for a call tomorrow and an appointment to be set up! Cross your fingers and toes!