What a Rotten Week !!!

On Monday Quinn had a significant bleed and again on Thursday. Finally quit bleeding in the night on Thursday. I knew when he woke that he needed blood so I made the call to get labs done. Unfortunately, it was later in the day when they called me back and advised us to go to the ER to get packed RBC - probably 2 units. His heart rate was 165 from being so low on blood. And the docs and nurses were horrible about dragging their heels. One doc had the nerve to tell me that I didnt know what I was talking about and that I was just there to cause trouble for him!!!!! How dare he! That man wanted to give Quinn Platelets and he wasnt even bleeding! So, the Beulah Bell (my wonderful grandmother who has passed) came out in me!!!!! He called me sour names and all kinds of stuff. Last words for him was he was not allowed in my sons room again and to get our Hematologist on the phone for me now!!! Giving platelets to him when he is not bleeding is totally not necessary and should be reserved for him since he is on the cuff of building antiobodies to the platelets anyway! He even managed to tell me that I had no idea what I was talking about and knew nothing of my sons disease!!!!!! OHHHHHHHH! Every one that I touched base with gave me some sort of business and made me cry even harder! Horrible, because I am not a cryer at all! I felt so rotten that I called my cousin to come and sit with me!

Finally, we were admitted to the floor and given RBC about 6 hours later. It was totally unacceptable for me to see him with a high heart rate and no RBC's being administered. Not good quality of care at all! This will be passed along!