Day #5

What a cruddy day lot of snow. Quinn opened the day with a massive bloody nose. He is now sleeping finally and the bleeding is slowing up. I have been caring for his bleeds succussfully for several. And these docs are treating it like a minor bleed and wont listen to me. When he bleeds he needs to be medicated and packed immediately. After filling up 2 large bowls they had to check to out to see if I could really do it. Immeciately, I got permission to use my own packing and to pack it right away. My voice was heard this morning. Will see. A bit ticked that the hematologist is now involved again. She has ordered Factor VII for Quinn along with the platelets. That is totally not necessary. The platelets should be all that is needed along with the packing. The hospital charges $60k for a unit of Factor. She is on her last leg with me. Well thismorning I was quite miffed with her. I tried to fire her several months ago and shepromised all this and that .... shemay get fired yet. I guess I am just a xxxxxxx. Don't care!!!!!

The girls and Owen camefor a minutes tonight. As always nice to see them but hate hate hate to see them go!!!! School was out today due to a snow day so they stayed with cousin Kelly and had a ball!

Tomorrow we start a new chemo - Busulfin. Seems like the ATG Rabbit has been very hard on his sleeping pattern. He is sucha trooper and told me tonight "Momma I am sure glad we had this one Marrow Transplant" So he super great attitude which I am forever thankful for.